Photos by Chris Gordon.
Lauren Santora looked fine today. She does many days. That’s the thing with chronic illness: it’s not as much a story of acute calamities — Lauren has been hospitalized several times in her eight years — but the practicalities of everyday life. The Santoras and other families with chronically ill kids face a quiet struggle that outsiders often fail to grasp.
Some days she’s good. Some days she isn’t. Her parents have to monitor her condition constantly. Lauren has type 1 diabetes, an autoimmune condition in which autoantibodies attack the insulin-producing cells in the pancreas.
The toll of Lauren’s illness is not confined to herself. It also falls her mother, Dianna. It falls on her father, Joe. And it falls on her brother, Ryan, who also suffers from ADHD. Both siblings also have celiac disease, another autoimmune condition.
Lauren has been playing hockey since she was two-years-old. She presents herself as a articulate and joyful little girl. Every day, Lauren tries to lead a normal life. But with chronic illness, you never quite get there.